Our mission is to enhance the quality of life for people with special needs caused by rare genetic disorders.
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Board of Directors
| JoAnn Brace, President | |
| Robert C. Hershberger, Vice President | |
| Chester Detweiler, Secretary | |
| Elaine Motylinski, Treasurer | |
| JR Bockoven, MD | Elmer Mast |
| Leroy Coblentz | Raymond J. Miller |
| Robert J. Crump | Tom Stone |
| Dr. Patra Duangjak | Joe Vitale |
| Chuck Fowler | Frann Zverina |
Directors Emeriti
Gordon Safran |
Joseph L. Weaver |
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Advisory Council
Scott Brace |
Holmes Morton, M. D. |
James Bryant, M. D. |
Linton Sharpnack |
Patra Duangjak, M. D. |
Susan Turben, PhD |
Betsy Juliano |
Kurt Wegner, M. D. |
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