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Fundraisers -
DDC Clinic sponsored benefit events |
Patchwork Benefit & Auction
Saturday, April 24, 2010
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--Change of venue for 2010 Patchwork Benefit & Auction--
People have told us that they would love the opportunity to see the new clinic building. Here is your opportunity! This year's Patchwork event will be held on the grounds of the new clinic ~ please join us at 14567 Madison Road, Middlefield, Ohio 44062.
Click here to view the Patchwork Benefit Auction invitation.
Click here to view the Patchwork Benefit Auction R.S.V.P.
For more information call 440-632-1668.
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Amish Benefit Auction
TBD |
For more information call
440-632-1668 |
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Support Groups
- DDC Clinic sponsored family events |
Post event update
Ganglioside GM3 synthase deficiency family meeting
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The GM3 Family Meeting was a great day of sharing.
Dr. Wang began speaking about new information he has learned about
this devastating disorder. Dr. Kevin Strauss, from the Clinic for
Special Children in Lancaster also spoke with attendees. Dr. Cui
from Wake Forest University also attended. The event was attended
by approximately 60 parents and 10 children with GM3 synthase
deficiency. It was agreed by all attending that the event should
be held each year to help families communicate with each other. We
look forward to another event in the spring of 2010. |
Post event update
National Cohen Syndrome support weekend
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This event was held on Friday June 20th and
Saturday June 21st at Metzenbaum Center on Cedar Rd. in
Chesterland, Oh. Friday begin with introductions and some social
time and then Dr. Wang spoke to the group about what has been
accomplished in the last two years since the group met. Dr. Jim
Lalumandier from Case Western School of Dentistry also addressed
the group of 50 parents. In the afternoon, Dr. Lalumandier had his
dental students do exams on the children in attendance. Saturday
was a day of all participants getting acquainted and sharing
information and good food. Bone density tests were done on
parents, siblings and children with Cohen disease. Some parents
got together to begin exploring the idea of a parent advisory
group to assist other families all over the world to learn more
about Cohen Syndrome. DDC Clinic will be a willing participant in
their advisory group. |
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Invited Lectures - DDC Clinic staff
Most lectures are not open to the general public - if you are a
medical professional
and would like more information on these lectures please call the contact below. |
| Location
& Date |
Event & Title |
Contact |
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Rainbow Babies &
Children's Hospital, Cleveland
February 11, 2008
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Pediatric Hematology /
Oncology Fellow's Conference
Title: From Amish culture and
rare genetic diseases to hematology - what we all can learn
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Alex Y. Huang, MD, PhD
Assistant Professor, Division
of Pediatric Hematology / Oncology
Rainbow Babies & Children's Hospital
Phone: (216) 368-1271
e-mail: alex.huang@uhhospitals.org |
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Department of Chemistry, Cleveland State University
April 1, 2008
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Special Topics in Clinical
Chemistry, A Seminar for Graduate Students of Cleveland State
University
Title:
Molecular Diagnosis of Genetic Diseases
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Aimin Zhou, Ph.D.
Associate Professor
Clinical Chemistry Program
Department of Chemistry, SI 424
Cleveland State University
Cleveland, OH 44115
Phone: 216-687-2416
e-mail: a.zhou@csuohio.edu |
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