Cardiomyopathy Family Gathering

Cardiomyopathy Family Gathering

Date(s) - July 23, 2022
8:30 am - 5:00 pm

DDC Clinic
14567 Madison Rd
Middlefield, OH

DDC Clinic will host a gathering for Amish families from Ohio and surrounding states who have lost children or have had a child with a heart transplant due to MYBPC3 gene-related cardiomyopathy.

This one-day gathering offers families an opportunity to:

  • Meet other families affected by MYBPC3 gene-related cardiomyopathy
  • Learn about the genetics of cardiomyopathy
  • Get updates on current treatment options, research and potential future therapies, including gene therapy

This informative program features:

  • Discussions and Q&A sessions
  • Presentations by DDC Clinic doctors and staff
  • Geneticists and pediatric cardiologists from Cleveland Clinic, University Hospitals and University of Pittsburgh Medical Center as well as representatives from Tenaya Therapeutics.
  • Free targeted MYBPC3 carrier testing performed by DDC Clinic Molecular Diagnostics Laboratory

Breakfast, lunch and childcare services will be provided at no cost. DDC Clinic will also help families with transportation costs as needed.

Registration is required. Contact DDC Clinic at 440-632-1668 to learn more.

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