Cardiomyopathy Family Gathering Coming July 23
May 5, 2022
DDC Clinic will host a family gathering on Saturday, July 23 for Amish families from Ohio and surrounding states who have lost children or have had a child with a heart transplant due to MYBPC3 gene-related cardiomyopathy.
This one-day gathering offers an opportunity for families to share, learn and support one another. Families will learn about the genetics of cardiomyopathy and get updates on current treatment options, ongoing research and potential future therapies, including gene therapy.
The program will feature discussions, Q&A sessions and presentations by DDC Clinic doctors and staff who will be joined by geneticists and pediatric cardiologists from other major medical centers such as Cleveland Clinic, University Hospitals and University of Pittsburgh Medical Center as well as representatives from Tenaya Therapeutics.
Families who attend will be offered free targeted MYBPC3 carrier testing performed by DDC Clinic Molecular Diagnostics Laboratory.
The event will run from 8:30 a.m. – 5 p.m. Breakfast, lunch and childcare services will be provided at no cost. DDC Clinic will also help families with transportation costs as needed. Registration is required.
Contact DDC Clinic at 440-632-1668 to learn more.