Compassionate Care, Global Impact: Advancing Hope in Rare Disease

November 19, 2025

On November 13th, DDC Clinic hosted an inspirational gathering at LockKeepers, bringing together supporters, partners, medical professionals, and new friends to learn about our work in diagnosing and treating rare genetic diseases. The evening served as both a celebration of progress and a powerful reminder of why our mission matters so deeply. Guests had the opportunity to learn how our unique blend of compassionate, family-centered care and cutting-edge research is transforming lives—not only in Northeast Ohio, but across the globe.

Throughout the event, attendees were invited into the story of DDC Clinic’s evolution. What began more than two decades ago in rural Geauga County as a response to an urgent community need has grown into an internationally recognized center for research and clinical care. Speakers reflected on how families who once struggled to find answers are now gaining clarity, support, and hope through our specialized genetic services. As our reach has expanded, so too has our commitment to ensuring that every patient—no matter their background, geography, or diagnosis—receives personalized, compassionate care.

A highlight of the evening was the opportunity to share how our research continues to garner global attention. Within our laboratory, discoveries are being made that contribute to scientific understanding of rare genetic conditions and help inform better care for patients worldwide. Attendees heard how ongoing studies, diagnostic advancements, and data-driven insights are allowing us to identify conditions earlier and treat them more effectively. These breakthroughs are making a profound difference not only for the families we see in our clinic, but also for countless others living with rare disorders.

Another important theme of the event was collaboration. We were proud to showcase our growing partnerships with leading institutions, including Cleveland Clinic, UPMC, Harvard Medical School, and University Hospitals. These relationships allow us to expand our capabilities, share expertise, and accelerate progress in ways that would not be possible alone. By working together, we are creating a stronger network of clinicians and researchers dedicated to improving outcomes for children and families who often have nowhere else to turn.

Above all, the evening underscored the impact of community support. Every advancement we make—each diagnosis delivered, each study completed, each life changed—is made possible through the generosity and belief of those who stand beside us. To our supporters, advocates, and partners: thank you. Your commitment enables us to serve more families each year, deepen our research efforts, and continue bringing hope to those navigating rare genetic disease.

As we look toward the months ahead, we invite all who believe in this mission to consider making a gift that directly empowers our work. Your support helps us continue delivering answers, expanding our research, and ensuring that every family receives the compassionate care they deserve.

Together, we are improving lives—one diagnosis, one breakthrough, and one family at a time.