Dr. Wang Speaks at Prestigious International Medical Conference

October 6, 2025

Dr. Heng Wang, DDC Clinic Medical Director, recently spoke at the prestigious 12th International Conference on Neuroacanthocytosis, Cohen Syndrome, and VPS13-related Disorders held in Switzerland on September 12-14.

Dr. Wang presented on two pivotal topics: “Building Bridges to the Future: Insights from Two Decades of Comprehensive Medical Care for Over 100 Cohen Syndrome Patients” and “Disease Management – Clinical Perspective.”

This special speaking engagement reflected international recognition of Dr. Wang’s expertise in the field of rare genetic diseases and demonstrated how groundbreaking medical work from rural Ohio is making a worldwide impact.

The conference brought together an international community of clinicians, researchers, patients, families, and advocacy groups. This collaborative platform focused on advancing understanding of VPS13-associated diseases, including Neuroacanthocytosis syndromes, Cohen syndrome, VPS13C-related Parkinsonism, and VPS13D-related ataxia.

The event’s objectives aligned perfectly with DDC Clinic’s mission: enhancing collaboration between scientists and clinicians, involving patients and families in research priorities, and exploring novel treatment approaches.

Dr. Wang’s participation in the conference not only reinforced DDC Clinic’s global reputation as a center of excellence in rare disease care, it also ensured that our clinic’s Cohen syndrome patients benefit from the latest advancements in understanding and managing complex conditions.

Congratulations to Dr. Wang on this well-deserved recognition and his dedication to improving lives through exceptional medical care.